Who are we?
Cancer Care Foundation Limited ABN 36 626 291 576 is a Not-For-Proft charity foundation dedicated to cancer research and the assistance of cancer patients. A key stakeholder of the Cancer Care Foundation is the CCA Group. The CCA Group is a licensed private cancer care provider delivering radiation therapy, chemotherapy and blood disorder treatment for patients living in Sydney and regional NSW. The Foundation will carry out its purpose in conjunction with the CCA Group by undertaking any of, but not limited to, the following activities:
a) supporting the treatment and management of cancer patients being treated at treatment centres within the CCA Group (especially those who are financially or geographically challenged);
b) providing services focused on the needs of the cancer patient, such as the provision of otherwise unavailable treatment options (such as advice on
nutrition or exercise) or options to relieve and reduce symptoms of cancer diseases or cancer treatment;
c) providing patient transport services to and from CCA Group’s cancer centres to enable patients to access healthcare;
d) undertaking research into the causes, diagnosis, treatment and/or management of cancer illnesses and publishing the results of that research;
e) providing training for medical professionals regarding the most recent developments; and
f) raising funds to carry out the above.
The Cancer Care Foundation is committed to providing leading edge cancer research and exemplary patient centred assistance. We can provide this
research and assistance with the kind and generous help of our donors. We respect the privacy of the personal information you may provide to us
when we deal with you – for example as volunteers, members, donors, customers, patients, carers, employees and stakeholders. We recognise the
As well as being an important professional and ethical commitment to you, we are required to comply with applicable Commonwealth, State and Territory privacy laws. The Commonwealth privacy law is the Privacy Act 1988. The NSW privacy law is the Health Records and Information Privacy Act 2002. Under these laws, we are required to comply with a number of Privacy Principles. The core Principles are the Australian Privacy Principles under the Privacy Act. A copy of these Principles can be found on Australian Information Commissioner’s website – www.oaic.gov.au
improvement and other support services cover more than one of the CCA Group centres, and the patients who receive our services can come from
any of the CCA Group centres, patient information may need to be collected, accessed and/or shared between one or more of the centres. Each of the
Our key partners
We participate in undergraduate and postgraduate training and research and development projects to both improve our services and to contribute
to the understanding of cancer and improved diagnostic and treatment services. In providing these services we work closely with the CCA Group and a range of medical specialists who are in private practice and who hold an appointment to use the CCA Group’s services and facilities. We also work closely with contracted pathology, medical imaging, pharmacy and other clinical service providers to ensure that we are able to provide you with comprehensive high-quality services.
To support co-ordination of clinical care, and to ensure that the information the treating health professionals need is readily available to them, we have an electronic clinical information system. This system uses a secure cloud-based storage system hosted in Australia. Our e-health service contracts require our providers to store your information securely, and to comply with applicable privacy laws.
We also use contracted transcription services to prepare medical reports for referring doctors, GPs and other health professionals involved in your health care. We also use third party providers to supply transport and accommodation for certain cancer patients and/or their families and may also use third party providers to assist with fundraising.s
- How we collect and handle your personal information;
- Who we exchange your personal information with;
- How you can access and correct your personal information; and
By continuing to correspond with us, using our website, by providing us with personal information, you are taken to have read and understood this
What personal and health information do we collect, store and use?
In providing our services to you, it is essential that we are able to identify you, know your and your family’s relevant medical history, keep records of our services to you, diagnostic tests, clinical assessments and specialist referral records and are able to contact you and your nominated next of kin.
This information may include:
- Personal details (including your name, address, date of birth, sex, ethnic background, your contact details and details for next of kin and/or other
persons to contact if required);
- Your and/or your family’s relevant medical history;
- The results of pathology, imaging and other tests required to assess and treat your condition;
- Details of your doctors and hospitals and other relevant health professionals involved in your health care;
- Volunteering details including your CV and any other information required for us to approve you as a Cancer Care Foundation volunteer; or
- Banking and payment details including tax file numbers, ABN, bank account and credit card information, and any other information required for us
to accept donations.
Generally, we will collect this information directly from you (and, where required, from your doctor, other health professionals and hospitals involved in your health care, your family members, guardian or carer). If we need to get information from other persons, we will ask your permission to do so.
We may collect this information through a variety of ways including completion of forms, telephone, email or SMS. You may also provide this information to us through our website or a mobile device.
It is important that the information we hold about you remains accurate and up to date. Please let us know of any changes in your contact and other personal details. Our staff may need to confirm your current address and contact details with you from time to time for this purpose.
Dealing with us online
When you visit our website, we may collect certain information about your visit. Examples of such information may include:
Cookies are small amounts of information which may be stored on your computer (after you register on our website) to enable our server to collect
certain information from your web browser. Cookies do not identify the individual user, just the computer used. Cookies and other similar technology
b) Site visit information:
We also collect general information about your visit to our website. The information we collect is not used to personally identify you, but instead may include your server address, the date and time of your visit, the pages you accessed and the type of internet browser you use. This information is aggregated and used for the purposes of system administration, to prepare statistics on the use of our website and to improve our website’s content.
c) Online payment systems
We use third party payment process providers whose services meet stringent security requirements. When you enter your payment details online, you are using a secure site with transactions protected by encryption technology and a combination of firewalls and intrusion detection systems.
We seek to keep current with available security encryption technology so as to maintain the effectiveness of our security systems. However, no
transmission over the internet can be guaranteed as totally secure and accordingly, we cannot warrant or ensure the security of any information you provide to us over the internet.
What do we do with the information?
For cancer patients, the information we hold about you will be used for the purposes of assessing your cancer and determining and planning
appropriate cancer research or other assistance that we can provide. Where required for your assessment and clinical care, the information will be
available to staff involved in your care. Unless you tell us otherwise, we will also provide your general practitioner and other specialists with the
information they need to continue your care.
We are required to report certain information about cancer diagnoses and treatment to government regulated cancer registries. We are also required to provide relevant information to your health fund, Medicare and other third-party payers who are paying for your care to support your claim for payment and to enable processing of invoices and accounts. Where requested by you or your treating doctor we will also provide information on your care to your personal My Health Record. We will send this information in the most appropriate way, using electronic secure messaging, mail, email or SMS.
Relevant donor information is retained for those donors who have elected to donate on a regular basis. Marketing and contact preferences are retained for all donors.
We respect and protect your privacy, and we do not disclose your identity to any other persons without your knowledge and agreement.
In rare circumstances, due to legislative requirements or a court order (e.g. subpoena), we may be required to disclose information about you to
regulators, law enforcement bodies or other parties without your prior knowledge or consent. Subject to any legal constraints, we will use reasonable steps to let you know of these requests.
How do we store and protect the information we hold about you?
We store your information at our premises, in electronic systems under our control and in our contracted cloud service.
We will take appropriate steps to protect the security of the information we hold about you, including protection against unauthorised access, virus or other electronic intrusions, fire, theft or loss. Our electronic records holding information about you are protected by security passwords. Our staff are
bound by strict requirements regarding protection of the privacy and confidentiality of your information as a condition of their contract with us.
You have a right to see what information we hold about you
Under Australian privacy law, you have rights of access to the information we hold concerning you. These rights also include correction of any errors in this information. Should you wish to access this information please contact us. There may be a fee to cover the costs of providing copies of this information to you.
Research, education and quality improvement
As part of our commitment to supporting the continued development of high-quality cancer care services, we may participate in and/or assist research programs, professional development and other educational activities. We may use the information we hold about you and your linked blood and tissue sample(s) to assist with this research and education. However, this information will not identify you unless we have received your agreement to do so.
Participation in any clinical trial will be subject to a separate detailed information and consent process.
How long do we keep the information?
We are required by law to keep your information securely for at least 7 years after our last contact with you (and up to the age of 25 if you are under the age of 18 at the time of our services to you). Much of the information in our electronic clinical information systems will be automatically retained for longer periods.
Queries or questions?
We will use our best endeavours to address your complaint as soon as possible, and in any event, no later than 30 days of receipt of your complaint. If you are not satisfied by our response, you have a right to make a complaint to the Commonwealth or State/Territory Privacy Commissioner and we can provide you with their contact details.